Last year my family and I were introduced to one of the most adorable little girls I'd ever seen. She has beautiful locks of golden hair and the sweetest smile that will melt your heart. When you look at little Aven, you would not know that she has an illness. She looks like a normal, vibrant 4 year old. Aven has Cystic Fibrosis, an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. You can read more about Cystic Fibrosis here.
We were given the pleasure of helping at the Family Fun Stop of the 65 Rose Tour last year. "65 Roses" is what some children with Cystic Fibrosis (CF) call their disease because the words are much easier for them to pronounce. 65 Roses® is a registered trademark of the Cystic Fibrosis Foundation. You can click here read more on the story of Mary G Weiss and her volunteer efforts. We baked 13 dozen cookies for the riders in the Family Fun Ride.
|Shelby getting ready to put cookies in the oven!|
|Emily enjoyed herself!|
|The girls hard at work!|
|The finished product.|
Saturday morning as we were getting ready to head out, the rain was pouring down. Despite the forecast, the riders still came out in support of a great cause. The temperatures were in the forties. But, that didn't stop the family fun riders OR the volunteers! We headed out and set up our Fun Stop in the rain. Thankfully the DVD player in the van kept the children occupied as we set up the tent which included a gas heater right in the center that proved to be more cherished than the fresh cookies not only to the riders, but the volunteers as well who were braving the cold and rain for this awesome cause!
|Riders and Volunteers gathering 'round the cookies AND the heater!|
|Aven all bundled up getting warm under the tent.|
|She was ready to ride. Go Aven!!!|
|Safety 1st! Need that helmet.|
|The Family Fun Stop 2011|