Showing posts with label Cystic Fibrosis. Show all posts
Showing posts with label Cystic Fibrosis. Show all posts

Saturday, April 02, 2011

The 65 Roses Tour 2011

Last year my family and I were introduced to one of the most adorable little girls I'd ever seen. She has beautiful locks of golden hair and the sweetest smile that will melt your heart. When you look at little Aven, you would not know that she has an illness. She looks like a normal, vibrant 4 year old. Aven has Cystic Fibrosis, an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. You can read more about Cystic Fibrosis here.

We were given the pleasure of helping at the Family Fun Stop of the 65 Rose Tour last year.   "65 Roses" is what some children with Cystic Fibrosis (CF) call their disease because the words are much easier for them to pronounce. 65 Roses® is a registered trademark of the Cystic Fibrosis Foundation. You can click here read more on the story of Mary G Weiss and her volunteer efforts.  We baked 13 dozen cookies for the riders in the Family Fun Ride. 



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This year, we were more than thrilled to come on board as a sponsor for the Family Fun Ride!!!  Again, we had a "Betty Crocker Bake night" and this time we made 12 dozen cookies:  chocolate chip, peanut butter, snickerdoodle, and of course sugar cookies with sprinkles!  Since one of the Betty Crocker sisters was out of town, we had to make do without her.  We had lots of help, though with Shelby and Emily who loved doing the baking.
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Shelby getting ready to put cookies in the oven!
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Emily enjoyed herself!
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The girls hard at work!
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The finished product.




Saturday morning as we were getting ready to head out, the rain was pouring down.  Despite the forecast, the riders still came out in support of a great cause.  The temperatures were in the forties.  But, that didn't stop the family fun riders OR the volunteers!  We headed out and set up our Fun Stop in the rain.  Thankfully the DVD player in the van kept the children occupied as we set up the tent which included a gas heater right in the center that proved to be more cherished than the fresh cookies not only to the riders, but the volunteers as well who were braving the cold and rain for this awesome cause!
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Riders and Volunteers gathering 'round the cookies AND the heater!
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Aven all bundled up getting warm under the tent. 
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She was ready to ride.  Go Aven!!!
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Safety 1st!  Need that helmet.
The tour was a great success in spite of the weather. I'd like to say a special thanks to ALL of the volunteers which make it all possible. Amber Carson, I am so proud to call you my friend. You work hard to make this event go so smoothly and I am happy to be a small part of it. Next year we will be back and this ride will be bigger and better. To see you and your entire family come together in support of Aven and others with Cystic Fibrosis is such an inspiration and I am so happy to be able to teach my children the importance of community involvement and fund raising! We must help and support each other to be productive citizens. To see more photos, or find out more information, you can click this link.

Addition to Post:  (4/5/11)
I am happy to report that the total collected for the Cystic Fibrosis Foundation thus far is $7,500!!!  
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The Family Fun Stop 2011

Monday, March 21, 2011

Spring Break

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Today is the first "official" day of Spring Break for my kids. But, since they weren't in school on Friday, I guess their break started a bit early. They were both in the doctor's office on Thursday with an unexplainable rash that only affected their arms! Thankfully it only lasted 48 hours and they are both better now. Little Emily never contracted the mysterious illness and we are grateful for that. She always seems to get things way worse than the other two when she gets sick.

We have no real plans for this week.  However on Saturday, we will be helping out at the Family Fun Stop for the 65 Roses Tour's Family Fun Ride!!!  This is a cause that we feel so good about helping.  When we met Aven, we immediately fell in love with her personality.  As it turns out my husband and I had been friends with her mother many years ago when we were younger.  As time went by, we lost contact with her and through God's grace, we were reunited again when we discovered that her sister-in-law has become one of our good friends.  If you have not signed up and you are looking for something to do next Saturday, I would strongly encourage you to do so.  Of course my family will not be riding because we will be passing out cookies and water to the riders as they come in for a rest at the half way point.  But, we will be with you all in spirit!  I am so excited about helping out this year as I know that the tour will be even bigger and better than it was last year.  :) 

To read more about Aven's story, you can click here to read what I had to say about last year's event.  There are links to more resources about Cystic Fibrosis and the story of how the "65 Roses" tour came about.  What a great feeling to have knowing that we are doing our part to help out such a wonderful cause while teaching our children that on Spring Break, you don't have to be acting like a fool on a beach somewhere doing things you will never be able to take back.  But, you can be at home, helping out others in your community who have a great need! 

Thursday, March 25, 2010

The 65 Roses Tour in Searcy, Arkansas

Shelby, Emily, & Tyler (my babies!)
As a mother of three healthy children, I count my blessings daily.  For the entire nine months I carried the three of them, I remember the constant worry that there would be something wrong when they were born.  After they arrived, I would wake countless times in the night just to hear their sweet, content breaths and watch their chest rise and fall.  Even now with my three children at the ages of 7, 4, and 1.5 I still do the same thing.  I cannot imagine the pain that a parent faces when finding out that their child is facing a life time of treatments due to an illness or even worse.


Cystic Fibrosis is one of those illnesses.  You may be like I was, you'd heard of Cystic Fibrosis but never really knew exactly what it was. Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. You can read more about Cystic Fibrosis here.

Kelsy Odom and Shelby Black volunteering at the Family Fun Stop!

65 Roses" is what some children with Cystic Fibrosis (CF) call their disease because the words are much easier for them to pronounce. 65 Roses® is a registered trademark of the Cystic Fibrosis Foundation. You can click here read more on the story of Mary G Weiss and her volunteer efforts.



Sweet little Aven.
This year in my hometown of Searcy, Arkansas through the efforts of some awesome people, the first 65 Roses Bike Tour was established.  When my husband and I heard of this awesome event, we knew that we wanted to be a part of it!  If you have read the story of sweet little Aven, you will feel the same way.  I was fortunate enough to meet her on Saturday and I must say it was such a blessing to see such a beautiful, energetic girl singing and dancing.  What a blessing to know that this was organized to help to find a cure for this debilitating disease that effects this beautiful gift from God.  You see, had I not known Aven was sick with CF, I would have never known that she wasn't a healthy, vibrant girl like all of the other little girls at the park that she played and danced with.  She's beautiful, kind, and not a bad dancer either!

Since I am by no means a cyclist, I knew that my efforts would have to be in the form of volunteering.  Thankfully I have a wonderful husband who was also willing to do his part.  My wonderful sister and I got together with our friend April who has "adopted" us as sisters.  We had a fun night of playing Betty Crocker.  We baked cookies with our children (well, we baked cookies while the children played!) to hand out at the family fun stop (1/2 way point) on the Family Fun Ride.   We baked 13 dozen cookies and most of them made it to the family fun stop.  Of course there were some set aside for samples and the dough had to be tested as well.


 We had the extreme pleasure of handing out cookies and water to the cyclists on the Family Fun Ride and I was so excited to capture a few shots of the riders entering and exiting the stop as well as posing with friends in front of the "We Took The Challenge" sign.  It was great fun and such an amazing experience to know that everyone there was in their own way helping to fight this disease.  The weather threatened to be dreadful for the bicycle tour, but I believe that prayers were answered because the rain held off until the festivities were over.
Some of the volunteers who helped make this possible.


This is SO his color! 

According to the 65 Roses Facebook Page, there were 207 Cyclists in this, it's first year and raised an estimated $6000!  Keep in mind that this was the first weekend of spring break.  I am certain that this hindered attendance a bit.  But, am so happy that Searcy came out to show their support for such a worthy cause!  I cannot wait to help out next year and am positively certain that these numbers will at least double!

Students coming together for a great cause!  

Not only sponsors but riders as well!
To see more photos from the tour, you can click here. You may purchase high resolution digital images of these photos at $5.00 each with the proceeds to benefit the CF Foundation. 

  • To find out how you can help change the CF from meaning Cystic Fibrosis to Cure Found, click here.
  • To do your part by making a donation, click here to find out how.

Amber on the radio.
I would just like to say a special thanks to an old friend, Brittany (Aven's Mommy) for being such a strong person and always keeping a positive attitude.  That is something that I always loved about you.  Your smile was always so beautiful and still remains so after all these years.  Amber (Aven's Auntie), you are such an inspiration!  I am so proud to call you a friend.  Your efforts for this fund raiser were so phenomenal!  Even though you had almost no sleep you were running at full speed for this event.  It was orchestrated like a well oiled machine.  You worked so hard to accomplish such an awe inspiring event and you did it!!!  I am so proud of you.  I know that your brother is proud of you as we are all proud of HIM for completing this bike tour in honor of his beautiful daughter, Aven.  I am also proud to call Searcy my home town.  I did not grow up here, but am proud to say that I am so glad that my children are.  Thank you, Searcy for coming out to support such a worth cause!  To see the rest of my photos from the tour (Family Fun Stop and Spring Park), click here.